Hello there so pleased that the infection as now eventually disapppeared. I would see the RA nurse tomorrow
discuss everything with her and take the mtx after seeing her if she says you should do.

Good luck let us know how you do


x

hi everyone,

well had a good appointment this morning,

firstly i established my Rheumy Nurse was dealing with the right PCT ( Buckinghamshire )

then she did my DAS Score which was as high as ever, she said the reason they wanted another one after a few months was in case i had made a miraculous recovery !!

and that will now go off today via email to them.

told her i was finally infection free after the last lot of anti-biotics, Lyn i'm not sure about my neutrophils .. i know my GP spoke to me about them on my of my various appointments lately, when he was dip sticking my sample pot, but it went over my head but i think all must be well there. i'm not sure if it shows on my Methotrexate card.

we then discussed my fear of starting on the Humira, which is well documented with them when i start a new drug .. some of you will remember i lost a lot of weight in the build up to going onto Methotrexate after being diagnosed. so we've agreed that i will go to see my own Rheumy Nurse for the first dose, rather than have the community nurse call in, as i have such faith in my Nurse and she know's how to deal with me .. lol, Hubby will come with me.

the PCT have meetings once a month so it will depend on when the next one is as to when i start.

but i felt much better after the appointment than i did at the start of the week when i first posted, although my fear is with me i know i've got to get on with it.

ohhh i did hold off taking my Methotrexate this morning but the Nurse said to keep carrying on with the 10mg.

would like to thank you all for your support and advice this week, felt very alone with it all i have to say, even with a loving family around me it must be hard for them to fully understand it.

i'll post when i get the go ahead to start,

Suzanne x

P.S. !!

just after i posted .. the phone went.

it was my Rheumy Nurse to tell me the funding had been granted !! how's that all in a day.

she said realistically, it will be the week after next .. as Pharmacy will have to order it in, as i am having it done in the hospital. and in all honesty i need a week or so to get my head around it.

Lyn, i did ask her about my neutrophils and she said yes they are fine, so glad you pointed that out to me.

so now i've got to keep calm till D Day.

thank again everyone,

Suzanne x

So Pleased for you Suzanne! Its great news fingers crossed that very soon you will see a big difference! Its nice of them to let you go to the hospital for the first one, it sounds like you have a good team looking after you...Please try not to worry too much you've coped well on mtx and I dont doubt you will cope well with Humira! Onwards and Upwards lovely!! xxx

Great to hear some good news Suzanne. You haven't got too long to wait either. I really feel for you with the worrying. I am exactly the same. I turned down biologics because I am scared but will probably have to give in one day. As hard as it might be you must try and be positive. You are going to have it so seriously, what is the point in worrying about it? I know, easier said than done but I bet when you have had it you will wonder what you were worried about. I hope so. I'm not sure that has come out how I wanted it to but I am just trying to make you feel better.

Sheila x

Oh Suzanne.

What a flipping nuisance. I think it good job you going for your scan and then you will be able to get
on with the TNF. Heres hoping that that you get a speedy result.

It is such a waiting game isn't

Rose x